I would like to thank all of you for your prayers in the past concerning my father. God heard them and my father is doing really well!! He just celebrated his 70th birthday yesterday!!
I need prayer again, though for myself.. I'm not even exactly sure what I need prayer for... I guess mostly understanding from my loved ones concerning my fight with MS.
I think the hardest thing for them to understand is how I can look so good on the outside yet still not be doing well at times. My mother thinks most of my symptoms are made up, that I fake them.
My husband, whom I separated from a few months ago...thought my bout of fatigue wasn't that bad...even though I couldn't do anything for a month, the exhaustion was disabling... He let me go for almost a whole month with barely eating.. completely ignored me...didn't help me at all....he just let me lay there day after day. Thank goodness my sister stopped by and saw how much weight I lost, it was near 20 lbs!! She went home and made a ton of food I could microwave... Actually, I should have been in the hospital by that point... But thank goodness I've gained most of the weight back and am doing much better....
My biggest problem is my cognitive abilities... My short term memory isn't too good anymore, I get confused easily when it comes to instructions..or if a bunch of information is coming at me quickly... My brains processes information at a slower rate than what it use to. It takes me longer, and a few takes, to understand it the way others with a healthy brain do. When it comes to reading, my brain at times, picks words which are close to the ones I'm reading and substitutes it for the actual words... All in all, this doesn't bother me too much. I've learned to work around it. What I'm having a problem with and what is causing me so much heartache is loved one becoming annoyed and frustrated with me...like I'm doing it on purpose. I just want them to understand and be more patient, caring and compassionate with me.
They wouldn't become annoyed if my legs weren't working so good, but when it comes to the cognitive stuff...... they do. My goodness, the disease is in my brain, not my legs.







